The Newborn Screening Saves Lives Act is making a march through Congress, finally!  The latest incarnation of the reauthorization includes ...

I read this interview with Dr. Beaudet from Baylor College of Medicine and was thrilled to see his comment about how well-educated the pare...

As a proud alumna of the University of Michigan, I was excited to see that they have been awarded a Challenge Grant from Genetic Alliance t...

A fellow Consumer Task Force on Newborn Screening Mom recently wrote an article for CoSozo about her family's experience raising three ...

Colorado House Bill 1288 was signed into law this week.  This is the update from Children's Hospital Colorado on the legislation: Unde...

A study published in Nature Biotechnology and also described in this article from The Independent , seems very exciting for genetic disorde...

While skimming through my alumni e-newsletter this weekend, I happened upon an interesting article about dietary fats .  While the main poin...