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Thursday, September 26, 2013

A Small Victory and a Tiny Bit of Relief

I forgot to take the cardiology referral with me to work today, but the minute I walked in the door after picking up the boys, I made that phone call.  I was dreading having to take LB to yet another specialist (mostly because I didn't want him to have a heart problem in addition to his metabolic condition), but at the same time, I was anxious to have some clarity and some answers about the murmurs and what they meant.  I was also dreading calling them and hearing that they could squeeze us in for an appointment in November and that we would have to wait more than a month to get those answers.

To my pleasant PLEASANT surprise, after taking all of the basic information on LB, they asked if we could make an appointment on MONDAY.  Really?  You mean Monday as in 4 short days from now?  Why yes, Monday...in four days.  I was floored.  Unfortunately, the appointment time was right in the middle of our oldest son's first preschool field trip, which we had volunteered to chaperone, so I pressed my luck and asked what their next opening was.  It was on Thursday, exactly a week from today and I took it. 

I hung up the phone and exhaled.  I was nauseous with worry and had seriously been on the verge of tears all day because I was so upset by the thought of LB having something else on his medical resume.  Knowing that we would have answers in one week was a small measure of relief.  I can deal with these feelings of anxiety and uncertainty for a week.  We wouldn't have to wait for a month to figure this out.  At this time next week, we'll know what we're dealing with.  We're hoping for another innocent murmur.  If it turns out to be one of the other possibilities (hole in the heart, heart valve problem), we'll just need to get to that place of peace again (similar to what we had to do when we found out he had MCADD) and just do what we need to do.

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