Our older (not affected by MCADD) son had given up his middle-of-the-night nursing and was regularly sleeping through the night by the time he was about 6 months old. Although it was only less than 3 years ago, the concept seems completely foreign to me now after parenting a child with MCADD. “He can really sleep ALL NIGHT LONG?” I asked our metabolic specialists. “Yes, he can safely go for 10-12 hours now,” they reassured me. Wow, 10-12 hours is kind of like an eternity when your last year has consisted of gradual steps forward from feeding the baby every 2 hours, then every 3, then every 4… Whatever will we do with this much sleep?!
This new philosophy on his feedings has been both terrifying
and liberating. Even though our trusty
alarm clock doesn’t ring at 3:30 a.m. anymore, my internal alarm clock still
does. I still wake several times during
the night with my first inclination being to look at the clock and figure out
how long it has been since LB’s bedtime bottle.
Instead of springing out of bed to feed him, I now have to talk myself
out of going in and feeding him just in
case (which I am successful at doing about 95% of the time) or merely creeping
into his room to check on him (which I am successful at doing about 50% of the
time).
It has only been a week since we stopped keeping track of
his food intake in our notebook and stopped setting the alarm at night and I’m
already sensing some differences. To all outward appearances, I’m sure he’s just a normal toddler to everyone else, but knowing that I can hand him a sippy cup of milk without measuring how much is in it or calculating how much he drinks is a definite source of relaxation for me. I'm starting to see LB as a regular kid instead of as a baby to be cared for
with extreme precision and diligence. In addition, I’m starting to see LB
relish his overnight sleep. He is still
waking once per night (and I’m still feeding him when he wakes up), but he
seems to be sleeping more restfully and waking up more happily with each
passing day.
Our plan forward is to let LB drop the middle-of-the-night
feedings on his own. If he wakes up,
we’ll give him 4 oz of formula (which is quicker and easier to deal with in the
middle of the night than having to run to the kitchen for milk). Our older son
dropped his nighttime feedings on his own without crying it out and I’m confident
that LB will do the same when he is ready.
It might take a while considering how artificial his overnight sleep
schedule has been to date, but I know it will happen eventually. It’s only been a week and I’m already seeing
him rest more peacefully, so it might be sooner than we think, too.
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